"A world-wide prospective study of INC on prognosis and biomarkers in GBS"

A world-wide prospective study of INC on prognosis and biomarkers in GBS

2000 inclusions!

Patient 2000 was inclused on May5th by Dr. Gerardo Gutierrez Gutierrez!

What are the implications of reaching this IGOS-2000 milestone?

  1. From now on it will not be possible to include new patients in IGOS; the website is now closed for new inclusions.
  2. It is important to continue the collection of follow-up data and samples from previously included patients. This collection will continue until the last (3 year) follow-up visit of the last included patients (so May 2024). During that window the website will be open for collecting these follow-up data.
  3. We are about to start a new round of data quality assessments for the first 2000 patients included in IGOS. You will all be approached for this in the coming months.
  4. We will also plan new transports of materials to Erasmus MC.
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PNS virtual meeting 2020

During the first virtual PNS Annual Meeting, the IGOS Meeting was also held online for the first time. We celebrate a succesful meeting but hope the next PNS meeting will be held in person in the beautiful Copenhagen.More >>
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Privacy Statement

Information regarding the General Data Protection Regulation for participants in
clinical research, for which Erasmus MC is the sponsor.

Since 25 May 2018 the General Data Protection Regulation (AVG) applies. The AVG describes the rights with regard to access, modification and deletion of personal data. This regulation does not affect the research itself. The way in which the researcher, Erasmus MC, handles your data is described in the patient information you received before the start of the study.

As a participant in scientific research, we would like to inform you about the changes:
You have the right at all times to view, change or withdraw your consent for the use of your personal data. The research data collected until the moment you withdraw your permission will still be used in the study. After your consent has been withdrawn, your biological material (if applicable) will be destroyed. If measurements have already been made with this biological material, this data will still be used.

For general information about your rights when processing your personal
data, you can consult the website of the Dutch Data Protection Authority

For more information or questions about your rights, please contact the
Data Protection Officer via the secretariat of the Legal Affairs  Department, telephone number 010-7034986 or the Dutch Data Protection Authority.